Original Comment:
| Maddy | Severe joint pain | May 12th, 2008 | Rating: Not Rated |
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| I was d'xed last August at age 61, Invasive Lobular with a single mets to spine. (Eliminated with raditation). I started on Armimedex, (minor intestinal side effects) switched to Femara after 3 months, which I took for another 3 or 4 month with no problem at all- NO side effects. But when the cancer progressed to 5 new spinal lesions, doc. switched me to Faslodex. After about a month I began having episodes (about once a week or 10 days) of VERY severe, crushing, throbbing body-wide pain. It was like having a body wide migraine. It would pass after a day or so. I took my last Faslodex shot on April 1st, and doc switched me to Aromesin which I started 2 weeks ago. Thursday afternoon I began with another one of those pain episodes, which I can only get some slight relief from by taking 4 Ibuprofen. It is Sunday morning and I am still in severe pain. It's 4 days now and this episode is not going away like the other ones did. I've been on all 4 of the Aromatase inhibitors now. I cannot live with this amount of pain (oh yeah- VERY profound fatigue/weakness goes along with it)as I have absolutely NO quality of life. Question- does anyone ever take a break from these meds? For how long? And does it alleviate the synptoms for a few months? The first 6 months I was on these meds I didn't have any trouble at all. After that, all hell broke loose. I know the half life of Faslodex is 40 days- it's now been just about that (actually, 41 days) since my last shot. I'm wondering if taking the Aromesin is compounding the side effects, with some Faslodex still in my system? Doc. is out of town until I see him on May 23rd, so not sure what to do in the meantime. Happy Mothers' Day to you all; hope everyone feels good! | |||
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