The below information on Thalomid has been taken from official FDA sources, but we cannot guarantee it's accuracy. Please use this site for educational purposes only. This site does not replace a proper discussion with your doctor.

    Brand Name:Thalomid
This drug was approved by the FDA in one form or another on:
1998-07-16 ,
This drug is made in one form or another by the following companies:
Celgene Corporation
This drug is available in the following forms:
View the actual FDA approved label for this drug at the following links:,020785s031lbl.pdf

About Thalomid

Thalomid (thalidomide) is used to treat:

  • erythema nodosum leprosum (ENL), an inflammatory complication of leprosy. When there is inflammation of the nerves in addition to skin sores, Thalomid (thalidomide) should not be used as the only drug treatment.
  • newly diagnosed multiple myeloma in combination with a drug called dexamethasone.

Precautions for Thalomid

  • Thalomid (thalidomide) causes severe birth defects (see "Special Warnings" section).
  • You must never share Thalomid (thalidomide) with anyone. You must take it only as prescribed.
  • Thalomid (thalidomide) can cause significant nerve damage (called peripheral neuropathy) that can be permanent. Your doctor will examine you regularly for signs of this condition. If you have numbness, tingling, or pain or a burning sensation in your hands or feet, tell your doctor right away.
  • Thalomid (thalidomide) causes sleepiness. Avoid situations where sleepiness may be a problem. For example, it may be difficult for you to drive a car or use other complex machinery. Do not take other medications that can cause additional sleepiness unless you have consulted with your healthcare professional.
  • Thalomid (thalidomide) can cause rapid changes in blood pressure when you stand up resulting in dizziness, weakness or feeling faint. If you have been lying down or sitting, take a few moments to sit on the edge of the bed or chair before standing up.
  • Some people have had an allergic reaction to Thalomid (thalidomide). If you have a rash, fever, rapid heartbeat, or very low blood pressure (e.g., feeling faint, weak or dizzy), contact your doctor right away.
  • Thalomid (thalidomide) can cause a decrease in your white blood cell count. Your doctor should check your blood regularly while you are taking Thalomid (thalidomide) if there are any concerns about this.

Side Effects of Thalomid

The most serious side effect of Thalomid (thalidomide) is its ability to cause birth defects.

There is also a concern that Thalomid (thalidomide) may cause an increase in viral load for HIV-positive patients.

Reports of patients’ experience after Thalomid (thalidomide)became available:

Seizures, including grand mal convulsions, have been reported since Thalomid (thalidomide) has been approved for use. Most patients had disorders that may have made them more likely to develop seizure activity, and it is not currently known whether Thalomid(thalidomide) has any seizure-causing influence. During therapy with Thalomid (thalidomide), patients with a history of seizures or with other risk factors for the development of seizures should be monitored closely for clinical changes that could cause seizures to occur.

Search the Web for more info:  

Recent Forum Posts on Thalomid


Is any adult taking Thalidomid for LCH of the bone? If so what results have you had? ck


im a thalidamide baby .born in 1965.i have alot of health problems.i cant belive its still only 42 but i feel like 65 .good luck to you all


My son is eight years old, he has sestemic JRA. He will be starting Thalomid very soon. I hope we are doing the right thing.

My Thalomid Research

I have a condition called Sarcoidosis. It caused me to have severe erythmatous nodules (red lesions) all over my body and they have not gone away for about 8 years now. Just to give you an ideas, they started out looking like mosquito bites, very ithcy, red and raised. They increased in size to about a nickel or quarter in size and now I have patches on my arms, legs, and elsewhere. My skin is very tender, so if someone just taps me there, I feel like I was just sucker punched or slapped very hard where the lesions are. I have been trying to find a way to clear this skin problem up and have tried several topical steroids thru dermatiologists and specialists. They tell me to live with and that should be the least of my worries, but it has become a nuisance because I have to wear long sleeves, long clothing and jackets, even on the beach. My sister told me she heard of Thalomid and I am beginning my research on this medicine. Please help me with any information or advice, as your input would be very, very helpful. I am desperate!

HCPC for Thalomid

Is it correct to bill Thalomid under HCPC J3490? This has been approved by Medicare since 1998 and it's still listed as an 'unclassified' drug?

I work for a SNF management company and wanted to know if this is correct?

Thank you,

Terry Oswalt
Life Care Centers of America, Inc.
Cleveland, Tennessee 37312

Revimid instead of Thalomid?

clinical trial of Revimid, less side effects, Geraldine Ferraro, VP candidate takes it. Anyone here take it?


The doctor had told my mother that she has muliple Myloma do to the fact that her count of plasma cell is up to 31%, she feels great with no syntoms of any kind. The doctor recommended that she should take Thalomid of which that I understand that it has a numerous side affects, she is definantly afraid to start taking it. If anyone is taking this medication at this time please let me know how effective or uneffective it is. Or any other information regarding of excess count of plasma cell in the bone marrow.


My aunt just start taking this drug (two) days ago for Cancer, my sister died of breast-brain cancer (1) year ago this week coming up.I truly hope this drug can save my aunt's life I not sure of the correct name of her
cancer but I do know it starts with a (m) and it is suppose to be quite


My mother took the drug thalidamide while she was pregnant with me.
I had severe birth defects as a result. She told me there was a thalidamide settlement but she didn't get in on it.
Is it to late for me to do anything about it and How do I find information about this settlement?
At the time I was born there were several babies born with similar or same birth defects come to find out according to my mother that those mothers had all taken the drug thalidamide.
Specialists came in at childrens hospital in cincinnati viewed me and these other babies. Also I had unusual skin discolorations.
I'm just trying to figure out what went wrong and why?
How do I find out about this settlement and is there any way I could pursue it now. I was born in 1956 at Middletown Hospital in Middletown, Ohio.


My mom got Multiple myleloma and the docter gave thalidomid for treadment with zomita. After she use thalidomid she hungry very offen and she can not to endure for hungry. Now she does not use thalidomid.


My mom got Multiple myleloma and the docter gave thalidomid for treadment with zomita. After she use thalidomid she hungry very offen and she can not to endure for hungry. Now she does not use thalidomid.


My husband has had Non Hodgkins Lymphoma since 1995, he has been in remission two times. It came back in 2002 and he went into remission again. They gave him 2 years to live. 3 years ago the doctor started him on Thalomid, he is now in remission five years(2 years the doctor gave him and 3 years on Thalomid). We are centain Thalomid has kept him in remission. He has had very little side effects.
Our problem now is his insurance refuses to pay or help pay (Medicare D) because they do not consider it a cancer drug even though FDA May 2006 approved it for blood cancers. The insurance company approved it for cancer the first year, but we are now in the 2nd year of Medicare D and they refuse to authorize use of it for cancer treatment. A prescription for 28 pills February of 2007 was $2,249.00 The next prescription will be 150.00- 200.00 more. September of 2004 it was $389.00
I'm not sure what we are to do, we thought Medicare D was our answer, we are paying for something that really is of now use to us.


I'm a 76 year old male with a blood disorder.I took Thalomid for 16 days to see if it could help build blood cells. It was a nightmare taking this medication. It brought on weakness and nausea and did nothing to improve blood cell production.

No Subject

How does a company justify raising the cost of a drug $500.00 per month? I have been taking this drug for the past year and when I went to pick up my January prescription the cost to me was that much more. Yes, I have insurance, but that covers 80% of my cost, leaving me with 20% of $1329.44 to pay. No wonder Americans are going to Canada!

No Subject

I took thalidomide in 2000 for a short while. I started with 1 capsule a day and excalated to three a day on my doctor's orders. I began to have neuropathy soon after I began taking it. I stopped taking it and have continued to be bothered with neuropathy to quite and uncomfortable level.
The drug did help quite a bit. I have multiple myleloma and even though I stopped taking it my blood counts have remained good even though I have not taked any in about 2 years. I do not regret taking the drug but would be pleased if the neuropathy would go away.

No Subject

My mother is taking Thalomid and I am hear trying to learn more about this drug. She was diagnosed with Multiple Myeloma in November of 2002. She tried kemo twice, but it almost killed her both times, she has since then stopped all kemo treatments. She is 66 years old and they have told her that she is too old for a bone marrow transplant. She just started taking the Thalomid on Monday August 4th of 2003. She is also taking a steriod (I cannot recall the name of it but I know it is NOT Predisone). She became very sick again. Weak limbs, Extreme nausea, migraines, low back pain, swollen hands and feet. I called her cancer doctor and they advised to stop taking the steriod for now. I am just wondering if it is the steriod that has been causing her trouble this week. She also has diabetes, anemia, high blood pressure, and kidney loss. Any advice or thoughts on this?

Post a New Comment/Question on Thalomid in our forums.